Rough morning after 2 weeks of smooth recovery

Been feeling better than anyone could have imagined, with having pulmonary embolisms in both lungs. My lung sounds and functions were clear, my ‘spells’ less so- I felt fantastic… until this morning when I woke abruptly this morning.

I woke up at 6 am, sweating and not able to catch breath. It’s 2 weeks since I was diagnosed with bilateral PEs and I haven’t had a ‘spell’ like this in over a week. I’d been feeling better.

I feel like it burns all the way into the middle of both lungs, hard to catch an inhalation, feel like I have to cough phlegm, but nothing.

My bp is lower than normal 102/80. I woke with tachycardia (fast heart rate) over 120, that went down to the 90s.

I’ve not had spells this bad since the hospital. My pulse ox reads anywhere from 93-98, depending.

I still can’t take a deep breath right now… it’s getting better, but it’s scary nonetheless.

I don’t drink, don’t smoke. I just started getting my steps back up from nil to 7k the last three days. I’m on the ketogenic diet.

When they said recovery is a process with pulmonary embolisms, they were not kidding. I can have relatively normal, excellent days- then BAM! Scary, back to square one.

Some folks in my support group say it takes months to years to recover.

My stubborn self was hoping for WEEKS. I push myself too hard. I am depressed, as much as I can be. Mostly because I don’t like to be idle.

Saw my gynecological oncologist this week and everything in that area is looking great since the hysterectomy. This surgery caused my PEs, btw.

I am too ornery and cantankerous to die. Too much to do… and I have a child to care for.

I refuse to succumb, but if anything happens to me, tell my baby I loved her.

So far, I am told I am lucky to be alive as it is. For this, I am absolutely grateful.

I have so many people I love and have loved. I don’t want to go anywhere.

I want to celebrate being alive. 2018 was rough. I am not the only person in my family to nearly lose their life in a sudden accident this year. We are blessed to be here right now.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s