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Aleph Bet Hebrew Skirt Project

We felt well enough to finish sewing her Aleph Bet Hebrew Alphabet skirt (with literal NAPS in between steps), just in case we’re well enough to attend family services tomorrow. She learned the Shema and Oseh Shalom with the other little ones and they’re kicking off a special Friday thing tomorrow.

She also loves (and I mean LOVES) this video of the kids Hebrew Alphabet song- at the rate she is going, we could possibly add Hebrew to her English and Persian and Filipino and smattering of French she knows already:

She also received a “Little Trixie”- a dressmaker’s dummy dressform, whatchamacallit. I call my big one Trixie, so now I guess it’s Trixie Sr.

The kiddie one is by Dritz and it is ADORABLE.  Maisie keeps hugging it like it’s her best friend. The measurements are adjustable to about size 12-14 kids, so this thing should hold up for a long, long time.

Maisie is slim and tall, so the measurements are a bit bigger than her actual girth- but with elastic waistbands and twirly skirts, that doesn’t matter.

All Maisie requests in a skirt are that they twirl and they have cool fabric. I can do this.

Actually, R’s been doing the actual sewing, while I tell him what to do. I prefer draping and design and hand sewing to machine stuff and cutting. To him, using a sewing machine is no different than making things out of wood with tools. He just has to be told how to do it and he does it.

All skirts are lined. I think the next one will only have elastic in the back of the waistband, unless I feel lazy.

I honestly decided to make these because:

1. Well made girl’s skirts are PRICEY

2. We all know how to sew and I would love her to have unique prints and fabrics

3. It helps to teach her to sew and know where her clothes come from and HOW THEY ARE CONSTRUCTED.

I think this is important. I was taught these skills and I want to pass them to her.

4. We love projects! LOL!

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Maisie’s Sick In Bed YouTube Science Videos

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My poor little monkey woke up with a stomach bug. She’s rarely sick, knock wood- and refused to believe there was anything wrong with herself.

She DID have time this morning to want to make math and science vids from her 4 yr old perspective.

#1 tells the difference between googol and Google:

#2 is kind of all about the tastebuds of the tongue…

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She’s so cute, even when she’s not feeling well! ❤

 

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Maisie’s 1st DIY Youtube vids

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My 4 yr old made a “Kawaii Kitty” toy for herself that we designed and she helped sew and stuff the thing.

She has her own tiny sewing machine, but she used the big one today.

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Maisie (after using the big sewing machine): “OOOOH, IT’S SOOO FAST!”

Here are her vids- I think she’s adorable.

As she says “Please press LIKE and subscribe” (Actually, she’s just cool with the thumbs up thingies)

and her last video of the night

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Miss Maisie Learns To Sew (at 4 yrs old!)

My friend dropped off a wonderful gift for Maisie- a mini Janome sewing machine that used to belong to her daughter (who is now a teen)!

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My 4 yr old (who has excellent eye/hand coordination) was immediately enthralled and wanted to learn to sew right away.

Everyday we’ve completed a project- she’s doing microwavable bean bags filled with rice for ‘owwies’. She made a heart the first day, a triangle for her teacher the second day, and today we did a bigger triangle with rag box applique hearts and other decorations.

Maisie said she wanted to be like an elf and make a lot of them for Christmas 🎁 presents-

This teeny Janome is a workhorse! It sewed through thick woolen material with no issues and has 10 stitch settings!

Each day she gets more confident with this thing- I should probably start her on hand sewing as well.

I hauled out a brand new sewing machine that had still been in the box for 5 yrs and never touched for me to use next to hers. It’s a Brother computerized 130 stitch quilting/sewing machine and I love it so far, too!

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she decided on how she would decorate ‘her side’ of the triangle

 

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Still Alive- Still Recovering from Pulmonary Embolisms and Pseudomonas Infection

Been a rough few months. Post PE syndrome is no joke. Glad to still be alive, though.

Found out that the hospital I had my surgery in for the hysterectomy gave me an almost fatal superbug uti (they sent me home with a catheter AND TOLD ME TO REMOVE IT MYSELF)- a pseudomonas infection.

I spent a week at the local cancer center getting antibiotic infusion treatments via IV. Since then, I’ve been much less chipper and so tired.

I don’t trust American hospitals anymore.

I started a cpap machine for sleep apnea 2 days ago, after having a sleep study done last month. I was having moderate apnea.

This is a fantastic article:

https://www.elsevier.com/about/press-releases/research-and-journals/sleep-apnea-can-contribute-to-recurring-pulmonary-embolism

Sorry for the short blog post, but super tired!

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This Week’s (Month’s) Highlights via Instagram

I’ve been really out of sorts because of the pulmonary embolisms, but here are some nice things that have happened this month- lots of birthdays!

First up, Maisie’s 4th birthday was on 10 September! We usually have huge parties, but my health hasn’t been the best, so we just did a family party, with grandparents from both sides and her first cousins from her dad’s side. She received My Little Pony, Spirit Horses, an Ant Farm (her fave, ours too), and the outhouse dollhouse built by my dad (with base and landscaping by us):

 

Her Norwegian dollhouse hosted the new Spirit horses:

Later in the week, she received macarons from our dear friend and we had a blast doing mundane things- also, my friend brought us wild paw paw fruit, which tastes like mangoes squished with bananas and pineapple! I was able to ripen them by sticking the branch in water for a week.

It’s still been brutally hot out here, so she had a lot of beach time and park time as well:

Then we ended this week with silver and gold henna tattoos- plus I received 2 new Tiffany heart bead bracelets to commemorate surviving the last 2 months since my embolisms ❤

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Updates on Last Hospital Visit/Pulmonary Embolisms

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at Kalamazoo Hospital- warts and all, no fuckin’ filter. 

Consolidating everything here:

I had a DaVinci Robotic hysterectomy on 12 July- they kept my ovaries (and doc says I may not go into menopause til near 60, as I apparently have abnormally young bits, yikes)- this surgery cured a lot of pain, but caused even worse. I almost died suddenly from blood clots to both lungs which were directly from the surgery, they surmise.

3 Weeks after my initial diagnosis and my embolisms on both sides are exactly the same as they were on August 8, but have not gotten new ones and they haven’t grown- had chest CT at Bronson last night.

Doc believes the first embolism may have occurred on July 27th, as I had an ‘attack’ that I thought was a newfound food allergy- but consistent with PEs.

However, it doesn’t sound like they’ve gotten any smaller, either…

I need to see a cardiologist at Bronson ASAP and have a Holter monitor done to find out what is going on, but they cannot do that In the ER.

They seem to think that my symptoms are because of this PE and I need to take it easy until the cardiologist fits me with a Holter- 

I feel very frustrated that I am basically supposed to be bedridden. The doctor said it was more important for me to hydrate than to move around at this point

Hospital cut me loose last night with a long acting beta blocker (metoprolol)- I am only supposed to take a fraction. He wants mr to start with half at bedtime, but I’ve played this bp med game before. I will do a quarter tonight.

I am waiting for the referral to go through with the cardiology department at Bronson in Kalamazoo, MI- which is 45 min from me, but a better hospital than the one around the corner.

Until then, I am basically supposed to act like a vegetable and keep hydrated.

My resting heart rate is higher daily, no matter what I do. This morning I woke up to it being 83 on avg while flat on back. I am power hydrating. My old avg per fitbit was 69-70. It goes up every day now this week. If I stand, it shoots up to 120-130 minimum.

Took over a dozen sticks, an u/s, and 1.5 hours to get a 20 port IV into me so I could have a CT. The head mosquito vascular nurse said I broke her streak. I’m a horribly terrible poke. LOL. Basically, I am the micropenis of the vein world. That’s a comforting thought. 

However, probably the nicest hospital experience I’ve had in years. Immediate, prompt care- real eye contact. Immediate info and they didn’t hold us hostage for 3 days and keep trying to drug me with hysterical Victorian woman meds.

There you have it.