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Updates (IG): Hanukkah, Desmond the MINI Cooper S Convertible, & New Skirts and Bows!

Happy Hanukkah to those who celebrate! (We do both Xmas and Hanukkah in our house, as we are multi-ethnic and have different religions. I want my daughter to grow up in a world of inclusivity, where all peoples and beliefs are respected)

We made new skirts and bows for Maisie (and also for friends):

We dressed in tea gowns and had a tea party:

Mommy bought herself a MINI Cooper S Convertible as a DIY project. I named him “Desmond” and he’s officially my new boyfriend. LOL. We play the Beatles “Ob-La-Di, Ob-La-Da” while we work on him. So far, he’s so much fun and I got a great deal on it. I’ve always wanted to restore a car/customize a car.

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My Tiny Fashion Stylist (YouTube Video)

4 yr old Maisie and her new Aleph Bet Hebrew alphabet skirt that we made (even while sick with a bug, that has since gone, knock wood)… she receive a little Dritz dressmaker’s dummy that she named “Trixie” in the mail this week and loves it! Sewing and styling are fun!

This was made for her special recital at shul on Friday.

Shirt and sweater and tights by Mini Boden.

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Maisie’s Sick In Bed YouTube Science Videos

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My poor little monkey woke up with a stomach bug. She’s rarely sick, knock wood- and refused to believe there was anything wrong with herself.

She DID have time this morning to want to make math and science vids from her 4 yr old perspective.

#1 tells the difference between googol and Google:

#2 is kind of all about the tastebuds of the tongue…

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She’s so cute, even when she’s not feeling well! ❤

 

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This Week’s (Month’s) Highlights via Instagram

I’ve been really out of sorts because of the pulmonary embolisms, but here are some nice things that have happened this month- lots of birthdays!

First up, Maisie’s 4th birthday was on 10 September! We usually have huge parties, but my health hasn’t been the best, so we just did a family party, with grandparents from both sides and her first cousins from her dad’s side. She received My Little Pony, Spirit Horses, an Ant Farm (her fave, ours too), and the outhouse dollhouse built by my dad (with base and landscaping by us):

 

Her Norwegian dollhouse hosted the new Spirit horses:

Later in the week, she received macarons from our dear friend and we had a blast doing mundane things- also, my friend brought us wild paw paw fruit, which tastes like mangoes squished with bananas and pineapple! I was able to ripen them by sticking the branch in water for a week.

It’s still been brutally hot out here, so she had a lot of beach time and park time as well:

Then we ended this week with silver and gold henna tattoos- plus I received 2 new Tiffany heart bead bracelets to commemorate surviving the last 2 months since my embolisms ❤

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Updates on Last Hospital Visit/Pulmonary Embolisms

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at Kalamazoo Hospital- warts and all, no fuckin’ filter. 

Consolidating everything here:

I had a DaVinci Robotic hysterectomy on 12 July- they kept my ovaries (and doc says I may not go into menopause til near 60, as I apparently have abnormally young bits, yikes)- this surgery cured a lot of pain, but caused even worse. I almost died suddenly from blood clots to both lungs which were directly from the surgery, they surmise.

3 Weeks after my initial diagnosis and my embolisms on both sides are exactly the same as they were on August 8, but have not gotten new ones and they haven’t grown- had chest CT at Bronson last night.

Doc believes the first embolism may have occurred on July 27th, as I had an ‘attack’ that I thought was a newfound food allergy- but consistent with PEs.

However, it doesn’t sound like they’ve gotten any smaller, either…

I need to see a cardiologist at Bronson ASAP and have a Holter monitor done to find out what is going on, but they cannot do that In the ER.

They seem to think that my symptoms are because of this PE and I need to take it easy until the cardiologist fits me with a Holter- 

I feel very frustrated that I am basically supposed to be bedridden. The doctor said it was more important for me to hydrate than to move around at this point

Hospital cut me loose last night with a long acting beta blocker (metoprolol)- I am only supposed to take a fraction. He wants mr to start with half at bedtime, but I’ve played this bp med game before. I will do a quarter tonight.

I am waiting for the referral to go through with the cardiology department at Bronson in Kalamazoo, MI- which is 45 min from me, but a better hospital than the one around the corner.

Until then, I am basically supposed to act like a vegetable and keep hydrated.

My resting heart rate is higher daily, no matter what I do. This morning I woke up to it being 83 on avg while flat on back. I am power hydrating. My old avg per fitbit was 69-70. It goes up every day now this week. If I stand, it shoots up to 120-130 minimum.

Took over a dozen sticks, an u/s, and 1.5 hours to get a 20 port IV into me so I could have a CT. The head mosquito vascular nurse said I broke her streak. I’m a horribly terrible poke. LOL. Basically, I am the micropenis of the vein world. That’s a comforting thought. 

However, probably the nicest hospital experience I’ve had in years. Immediate, prompt care- real eye contact. Immediate info and they didn’t hold us hostage for 3 days and keep trying to drug me with hysterical Victorian woman meds.

There you have it.