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Bilateral Pulmonary Embolisms (blood clots in lungs)- in pain and in hospital, but still alive, so far

I haven’t been updating my hysterectomy saga, as I’ve been recuperating- or trying to.

Almost died this week, and am still in hospital. I have Factor V Leiden, a genetic condition that makes me prone to blood clots- and they formed after my surgery.

More:

I am in shock.

Dr came in, they found two blood clots, on either side of my lungs. One had already burst into many bits- or ‘fillings’-I am being put on Eliquis to dissolve them and must be on this med for at least 3 months… then I see the hematologist again after.

It feels like pneumonia or bronchitis with a bloody copper taste in my mouth- stabbing pains, numbness, shortness of breath, and chest pains.

They are likely a result of my surgery and Factor V Leiden.

I am very fortunate, as they somehow bypassed my heart and didn’t kill me instantly. I had been having chest pains and difficulty breathing everyone at first presumed was anxiety.

They are keeping me at least another day or two for a heart study, to make sure I don’t have a hole in my heart.

(Update: heart is great, no holes)

MRI of brain is clear of stroke, thank goodness. My headache is still crazy bad, so they are going to give me toradal once and put me back on my usual bp meds.

I KNEW something was wrong- when they say ‘feelings of doom’, it is real. I was worried I wouldn’t be leaving here at one point today. My chest hurt so badly. I try joking things away, but this is still a bit of a shock to me.

As of Aug. 9, still in hospital. I just had another chest xray, pain comes and goes and I sometimes feel like I am suffocating. Doc says this is definitely from my surgery. Even on lovenox injections, these can still form. SO scary.

FYI, I am not wanting to die.

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I was in the hospital all yesterday evening

my 2nd IV, after they blew out a vein in my arm

my 2nd IV, after they blew out a vein in my arm

My father had cataract surgery yesterday morning and I went with Maisie and my mother to bring him there.

Out of the blue, I felt a sharp pain in my right shoulder blade. It worsened as time wore on, eventually my entire right hand was also numb.

Later that afternoon I called my doctor and was going to come in to see her.

About an hour after calling her, my LEFT arm/hand started to feel numb and breathing became difficult.

Since I have Lupus (a genetic autoimmune disorder) and Factor V Leiden (another genetic thick blood clotting issue), I called the doc again and she told me to get to the ER.

“Better safe than dead” were her words.

Not wanting to worry my father, who was recovering from surgery at my house, I simply asked him if he could watch Maisie while I ran quickly to see my doctor.

While I drove myself to the Emergency Room, the pain became nearly unbearable. I worried I was going to pass out before getting there. Luckily, I made it with no problems.

They did an EKG immediately, gave me an injection of some pain med that starts with a PH or F, then took tests to check for blood clots, did X-rays. The initial pain med did little more than make me dizzy, so eventually they gave me morphine. THAT barely worked, so I ended up with an injection of valium as well.

My blood clotting test came back too high, which scared the crap out of me, so they whisked me down the hall for an angio CT scan. While pumping the contrast dye through the crook of my arm, I felt a sharp pain.

Yay! They blew my vein.

I was sent back to my room and had to take ANOTHER blood test to check for heart attack. During the analysis, the machine breaks down.

Double yay!

Eventually I was discharged- they believe I have ANOTHER herniated disc in my spine.

My child is the destroyer of spines- I am convinced.

I was given a prescription for valium and instructions to call my doctor.

Now I have an appointment tomorrow at 10 am and I can do very little but lay in bed.

I had a lovely hour long massage today, which helped so much.